Thursday, June 26, 2014

Patience


You know how your parents always said, “Patience, you’ll get there down the road.”? 

Now, you are down the road, and the point is, people without special needs realize their interests quickly, and go to college. 

Yet, the trick is , what to tell someone with special needs? Often, people with special needs hear, "Patience, patience, you’ll get there." But that can be nerve wracking for them. The question is, “Why?” In today’s society, everyone is wanting to get everything quickly. You can microwave your food, or use computers, but people with special needs are never going to get past their limit of what God gave them.   

What I am saying is, we need to learn to respect everyone’s boundaries equally, including people with special needs. They deserve to be heard and respected just as much as you do, when you need it. 

So, even if it is volunteering, taking time out to listen is the best way for people with special needs. That is because half of the time, what they are trying to say may seem like a puzzle to you, but it is their reality. I went through that. My mom had back surgery, and my dad would always explain it , but gave too many details for me to have on my plate. 

Yet, because people are not patient, I was afraid to speak up and ask what he meant, because I didn’t know better. The pain for me kept growing, and it affected me to where I am at the end of the road for medicine. A new door has opened up though, and I have the opportunity to have a VNS implanted in me to help with my seizures. I am very thankful. 

Some families may be scared to hear that someone may need that, but the person with special needs is thankful that people are looking out for them in ways they can’t. I am hoping this takes a lot more off my plate, and lets me gain more confidence to be involved in activities. It is very important to know this because, yes, some families are poor and need help with this, but it might be coming to where volunteering may be a help to these people, and they can be taken care of, instead of being told you will be okay, but not have the support.

Until next time…
Alyssa

Monday, June 9, 2014

Have more respect!

Have more respect out there, no matter what the gender is. 

I notice that a lot of times, people of the same abilities stay in their own groups. When somebody comes along who is different, but is still what everybody else is on this planet; human. It doesn't matter if it's your status or your culture, everyone has feelings.

And as we know, feelings are a hard issue for people with challenges from a disability. They would also like to be included.

If you don't feel you're included you often feel left out. It can sometimes take ages for the feeling to fill because that is really how you get involved with things out there. You're not going to want to do all those activities like hiking and Disneyland if you don't have friends with you.

A lot of times because people in our shoes have a hard time asking, we would like to be accepted more for who we are and not tried to be turned into someone we are not. That is how they get taken advantage of. The more you open up when you are younger the better you are able to communicate as you grow.

Accept when other people don't understand things. What is just a joke to you maybe hurtful and teasing to them. Listen when they ask for help and take them seriously. Laughing at someone who is asking for help means that nothing happens and they get nothing out of it. When you laugh at someone who asks a questions, they feel like they have felt before but hurt more. That's the truth.


- Alyssa

Thursday, May 29, 2014

Focus on medicine side effects


When you see your family members or your children acting different, you should not always assume they are being crazy. Their behavior can be caused by side effects from medicine.

A lot of times, people may not want to know there is a reason, but if you stop and think about how you know the person, you should ask yourself if this is behavior that is common, or if it is new. If it is new, you should bring it to their attention to see if they understand it, and a majority of the time, they don’t understand it. At that time, they should talk to their doctor to see if it might be side effects from the medicine they are taking.   

I discovered an issue with side effects because my behavior was changing, so I went to my doctor. You have to be straight with your doctor, so they have a better understanding of what is going on. They may want to look at changing the medicine, or increasing or decreasing the dosage to see if that helps.  

 Try to be with the person when they go to the doctor, because often, they can be as firm and straight with the doctor, because they may be able to fill in some details that the person was unable to relate. I have been having trouble when I go to the doctor without my mom. I have been using my supports from the agency that works with me, and it helps to have an advocate.

Until next time…
Alyssa

Thursday, May 22, 2014

Watching out for yourself.

 

Have you ever felt that someone is forcing you to be different, or do something you don’t want to do? 

When we get put in that situation, it’s best to say, “I don’t want to be involved”.   

A lot of times, though, people feel trapped if the person sounds bossy, or too firm, the other person may feel less comfortable saying “No!” Often we are going to be put in this position, so sometimes we need to practice saying “NO”, firmly.  If we don’t get to say “no” firmly, that is how we may be taken advantage of. I have experienced it, and it is not easy to get out of, once you are put in the situation.   

If you feel like people are going to be taking advantage of you, you might want to talk to someone you trust, because they will be able to give you advice on how to get out of the situation, and stay out of it.  The trick is, that we get caught up in our lives, but often don’t stand to see where we are. So, when we do, sometimes you find you are much further away than you need to be.  That’s what saying no is all about, to keep you on track. 

I know that it’s harder if you are at your job, than if you are at home, but you still always have the right to say "no."

Until next time…
Alyssa

Thursday, May 1, 2014

Focusing on what's out there.


It seems that during this Spring season, there are a lot of germs in the air, and people are getting different illnesses. 

A lot of times, people are afraid to speak out about being sick because they may hear negative responses, like " We're doing all we can." The importance about opening up about our body is to keep track of what is going on, and then to be able to notice when something's not right, like side effects of medicines. 

I got myself into a tight situation at work, after falling while working outside, and having a hard time getting up. I kept working, and tried to tell people I didn't feel well, but they didn't listen. One of my coworkers spoke up for me, and said I was serious, then they listened. 

The point I want to make is:  opening up also means to express what you are feeling with your body. People need to respect and listen because it could be serious. We also need to follow up with our doctor often to keep up with our body. 

I say that everyone, disabled or not, has a right to speak up and speak out about what is on their mind. A lot of times when people do speak up, a lot of ignorance goes on, and I want to see more people being heard,because often times families don't find out until you get hurt. 

The bottom line is that people need to open up, and the rest of us need to listen harder.


After while crocodile!

Alyssa

Thursday, April 24, 2014

Respect and Understanding: A message to the real world.



Every once in a while, everyone wakes up and is unsure what they want to do that day.

When that happens, I find it is best to write a list of things you can do, then decide if they have to be done that day, or if they can be put off. One of the things I notice is that a lot of times, people like to procrastinate, and that, I find very disturbing. 

If the person is doing something they need to do, that is all that matters. Yet, we hear a lot of judging and that gets in the way of a lot of people’s emotions, especially people who need help. 

I went through a process this week where I was having questions at work and people would answer me with things like, “You’ve been here for 12 years, you should know how to do that.” Or, “Use common sense!” 

We need to be more understanding and listen to people who ask questions, because whatever it sounds like to you, it is still important to them. 

Being understanding and listening are two very important goals toward guiding people. Like, if you don’t want your child to smoke, you should not smoke in front of them. This takes practice, so it is important if you can, to start doing it with them early in a relationship. I want to stress that people do that, because in my case, being heard is very important. I sometimes have a tendency to ask too many questions if I am not told that they understand, sometimes I don’t know they understand.

Have a good day,
Alyssa

Thursday, April 17, 2014

The importance of listening.


I want to talk a little about listening to people. 

I was at work, fell while I was outside, due to a problem with my balance. No one was around to assist me, so I had to try to get up on my own.  I eventually got up and went inside my workplace and tried to tell co-workers and supervisors that I wasn’t feeling well. 

My supervisors listened to me, but my coworkers thought I was playing a game. Eventually an accident happened and I had to be taken to the hospital by ambulance. It wasn’t until the accident happened that people took me seriously, therefore, I felt like I was being treated as a child.

When people tell their parents or teachers something that may sound silly to them, don’t assume that they are playing games. For the person who has disabilities, that is an important message to get out; they need to be heard. I think listening is a big way to help their confidence.

Thank you for listening to my blog. 

 Alyssa