Alyssa: Hi Megan. Thank you for
taking the time to meet with me. Do you see any patterns of need amongst the
adults with disabilities you serve?
Megan: The patterns
of need I observe are:
-Employment
-Job placement
-On the job support
-Support in
managing social connections
-Romantic
-Friendships
-Family
-Employment
-Helping
individuals with disabilities to advocate for themselves while out in the
community
-Because people with disabilities
communicate and interpret things differently, people often get taken advantage
of in stores and on the street.
-In regards to
the families we serve, we often help support families in knowing that we can
support individuals with disabilities while also honoring the person’s hopes
and dreams. We often work with families in breaking assumptions and segregative
thought patterns that make up the disability support system.
Alyssa: What are individual’s lacking in order
to live the lives they want to live in their communities?
Megan: The biggest flaws in my opinion both
nationally and here in IL are in regards to social connections. People with
disabilities don’t often have the opportunity to ‘bump into people’. The
institutional model that currently prevails in many states as well as here in IL
offers little flexibility and choice. We put people in structured day programs
despite personal interests, passions, desires, chemistry or connections. There
is limited availability in where these folks can work and how they spend their
days.
We need more
focus on creating meaningful connections for individuals with disabilities. We
can’t expect jobs and social opportunities in the community to magically appear
without individuals advocating and making connections with potential employers
and friends.
Beyond the
lack of funding for support services, we are lacking agencies with progressive
models that value an individuals right to choose the life they want to live.
Alyssa: How do
perceived needs and wants differ between disabled adults and their caregiver,
guardian or support network?
Megan: There are
reasonable fears instilled in parents regarding their children from the time
they are born regarding what their child will, wont, is and isn’t capable of.
The ability to take reasonable risks is a human right. It is a big part of
growth. Making mistakes and learning coping skills is essential to a full,
independent life.
Alyssa: Thank you for
sharing your thoughts with me.
Megan: You’re most
welcome.
You can learn more about the Center for Independent Futures and the important work they do at:
http://www.independentfutures.com/
You can learn more about the Center for Independent Futures and the important work they do at:
http://www.independentfutures.com/
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